The SSHOC project announces an interactive workshop aimed at practitioners and policy makers involved in the work on GDPR, research ethics, and Code of Conducts.
Participants will gain insights on experiences about codes of conducts, offering the opportunity to discuss the need for code of conducts, and possible challenges and experiences regarding establishments of code of conducts.
The discussions will be incorporated in the work of a further SSHOC task, namely to initiate a Code of Conduct for Social Sciences and Humanities.
SHORT DESCRIPTION
How is it structured?
- Presentation of findings in a SSHOC report and what a Code of Conduct entails, by Ina Nepstad and Mathilde Steinsvåg Hansen, NSD - Norwegian centre for research data.
The workshop will start with a short presentation of the findings in a SSHOC Deliverable, that is a report on the impact of the GDPR on research and possible implications for EOSC. It describes and compares the national implementation of the GDPR across Europe, by examining some European countries' national laws and conducting interviews with researchers. It also describes some implications GDPR might have for EOSC.
In addition, there will be a short presentation of what a Code of Conduct entails and how it might affect findings in the mentioned report.
- Presentation from BBMRI ERIC’s work on a Code of Conduct by Michaela Th. Mayrhofer, BBMRI ERIC.
Next there will be a presentation by Michaela Th. Mayrhofer. She will talk about BBMRI ERIC`s experiences and work on their Code of Conduct for health research.
- Plenary and break-out rooms discussion about experiences, challenges, and recommendations regarding Code of Conducts.
During the last part of the workshop, we invite all to discuss the need for code of conducts, and possible challenges and share their experiences regarding the establishments of code of conducts.
Who is it for?
This two-and-a-half-hour workshop is designed for practitioners and policy makers in the humanities and social sciences, research infrastructures, and ERIC policymakers.
How to Register
Attendance if free of charge. We would like to invite you to register using this FORM. You will receive information about how to attend the session once you register.
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About the speakers |
Michaela Th. Mayrhofer is a political scientist and historian by training. She was educated in Vienna, Louvain-la-Neuve, Essex and Paris. Her PhD thesis was shortlisted for the ‘best thesis 2010’ young scientist award by the Austrian Society for Political Science. Part of her academic career she spent at the CERMES (France), University of Essex (UK), Brocher Foundation (Switzerland), University Graz, University of Vienna and Klagenfurt (among others). Her research interests include the governance of life sciences, societal implications of AI and data protection. She has been working for BBMRI-ERIC since 2013, where she serves as Head of ELSI Services & Research since 2019 and stepped up as Co-Interim Director General, scientific between Feb-Aug 2020. |
Mathilde Steinsvåg Hansen has a law degree from the University of Bergen. She has been working as an advisor at NSD since 2019, where she provides guidance to health researchers about privacy legislation. She also works as a Data Protection Officer for two external institutions. |
Ina Nepstad is senior advisor at NSD, where she assists health researchers to enable high-quality research, while at the same time safeguarding privacy. Prior to this role, she worked at Haukeland University Hospital as a researcher, specializing in blood cancer and allergology. Ina has a PhD from the University of Bergen (Bergen, Norway) and Hopital Cochin, INSERM (Paris, France), and a Master of Science (MSc) from the Norwegian University of Science and Technology (Trondheim, Norway). |
Photo by Tamara Menzi on Unsplash
Mathilde Steinsvåg Hansen has a law degree from the University of Bergen. She has been working as an advisor at NSD since 2019, where she provides guidance to health researchers about privacy legislation. She also works as a Data Protection Officer for two external institutions.